
BLOG!
www.marcyschronicles.com
February 28, 2010 has been determined by a collection of foundations as a date to Unite Bloggers Worldwide in Support of People Facing Rare Diseases.
Anyone can participate. There is no limit on the number of posts, the type of posts, or the direction of thoughts and opinions. Here is the direct link to www.marcyschronicles.com the blog connected to our foundation's website. Thank you for your participation.
We are the only website in the world that connects parents whose children have the same rare disease. We understand how important it is to have access to medical information and to get in touch with other parents dealing with your same issues.
Empower yourself with knowledge about your child's rare disease. Together with a team of medical specialists, we have created a library of rare pediatric disease write-ups. We compile and post current medical facts, information, support groups, and web links to explore.
Madisons Foundation is dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening diseases, and to facilitating effective communication among parents, physicians and medical experts through:
